

Ladataan... In a Different Key: The Story of Autism (alkuperäinen julkaisuvuosi 2016; vuoden 2016 painos)– tekijä: John Donvan (Tekijä)
Teoksen tarkat tiedotIn a Different Key: The Story of Autism (tekijä: John Donvan) (2016) ![]()
Top Five Books of 2016 (108) Books Read in 2016 (417) Ei tämänhetkisiä Keskustelu-viestiketjuja tästä kirjasta. ![]() I was not a fan of this book. This was a decent book, but I felt that this was a bit biased. This is a good overall history of autism in Western society. It is readable, and presents a fairly unbiased picture of the messy politics and the many different stakeholders in this mental health issue. This is a history of autism , beginning in the 1930's with the case of Donald Triplett, who was born in a small Mississippi town, and who was the first to receive an official diagnosis of autism by Leo Kamner, one of autism's early experts. At that time, and for a long while afterwards, the families of children receiving such a diagnosis were told to institutionalize them and to forget they had ever been born. The history is told over the 20th century and into the 21st through a mosaic of individuals whose lives were and are touched by this condition. Through their lives all aspects of autism are covered, from the era of "refrigerator mothers", to the myriad of controversial treatments that have been devised, as well as research, bogus and otherwise into causes and outlooks for the condition. This book is the history of the battles that the families of those with autism, as well as those with autism themselves, fought and are fighting to live the best lives possible. I found this book to be extremely readable, and in fact riveting. This was a history of real people, not statistics, and it was presented in an informative and logical way. Highly recommended 4 stars ei arvosteluja | lisää arvostelu
"Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi became the first child diagnosed with autism. Beginning with his family's odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism--by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting "refrigerator mothers" for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families' battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne'eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies--from the question of whether there is truly an autism "epidemic," and whether vaccines played a part in it; to scandals involving "facilitated communication," one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death. By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability"-- No library descriptions found. |
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I happened to ask my wife one afternoon if there were more cases of autism in contemporary times or if such cases had always existed but were now simply reported more frequently. The next day, I saw In a Different Key in the library and picked it up to see if I’d find the answer. I did. That particular answer comes early in the book, which is more of a cultural and historical examination of autism than a diagnosis or scientific investigation. There are genuine plot twists as well as one episode (concerning “facilitated communication”) that reads like a treatment for a disturbing movie. It also never gets bogged down in minutiae: Donovan and Zucker respect their reader and have written a book that will appeal to laypeople and experts. Many passages provoked me into thinking about similar “scientific” facts of our times that are regarded as unshakable--but could be as wrong as those regarding the “refrigerator mothers” whom many experts (and the mothers themselves) believed to cause autism. Recommended.
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